Rest as Radical Resistance

I play with LEGO as a means to rest, so this photo is of a little LEGO housefront with a window and a door, atop a piece of green LEGO, with an above-ground pool, a fence, a flowerbed and a windmill also made of LEGO. Also, my hand is in this photo because I fucking suck at photography.

I have been on hiatus.

I’m actually not sure if I can call it a hiatus. I didn’t really intend to take a break from blogging, much like I didn’t really intend to take a break from working, talking to my friends or showering when not absolutely necessary. My mood took a bit of a nosedive a few weeks ago, and I’m slowly recovering the ability to function to my usual (and still less-than-optimal) degree.

I’ve had a lot to contend with, too: first, I graduated from uni (with a 1st class degree in English, baby!) and then I had a birthday, and then I had a tribunal about disability benefits to attend, and then I had to move out of my old flat. Note that I did not mention moving into any sort of new accommodation – because student tenancies are stupid, I am technically without a fixed address at the moment. My possessions are mostly in a storage unit, apart from a stash of clean knickers and sex toys at my Daddy’s house and some other bits and pieces scattered across the homes of my mum and my other two partners, 60 miles away. In case you were wondering how my autistic ass has been coping with the change: it’s been 19 days since the move and I’m still having nightmares about leaving possessions behind.

I’ve been feeling so angry with myself lately about letting my blog fall to the wayside. I love blogging. I’m passionate about sex and disability and relationships and kink. I feel so at home in the sex blogging community and I feel a sense of responsibility towards the people who read my content to churn out some more. But I don’t want to churn out crap, and I’ve barely been able to assemble a coherent Tweet lately, so I’ve been forced to let my brain have a break.

There’s been one other factor complicating the whole blogging thing: the seemingly imminent end of the world. There are children in cages in the U.S., Bitcoin setups using the same amount of energy as Denmark and so many more crises unfolding all at once. On the one hand, this makes writing about how much I love puppy play seem embarrassingly futile. I sometimes feel as if I should be chaining myself to something or scaling a monument or flying to America to vandalise ICE vans, but I can barely drag myself to the corner shop at the moment. I have to accept my own limits.

And then, on the other hand, I feel an enormous amount of self-imposed pressure to do what little good I can manage by writing about sex and kink, and hopefully making other people with non-mainstream sexual proclivities feel a little bit less alone. I would never devalue the work that other online activists do, and I do regard my blog – especially the bits about disability and queerness – as a form of activism. But I just haven’t been capable of writing anything that makes any fucking sense as of late (as evidenced by the three garbled documents in my Drafts folder right now, taunting me every time I open WordPress). That’s a limit that it’s been harder to accept, because “blogging more often” sounds like such an achievable goal on paper. In reality, though, I don’t even have the executive function to charge my laptop half the time.

In spite of knowing I need it, I’ve been regarding this accidental period of rest with a festering resentment. I know I need to slow down, I know I need to rest, and I know that I’m holding myself to standards I would never hold another person to, but I’ve still been beating myself up about not blogging, not working, not “achieving” anything. I also know, from therapy, that I’m supposed to ask myself, “What would I say to [insert loved one here] about this?” whenever I’m beating myself up. And I know what I would say.

Rest is an achievement. It’s not just a passive state of being; in this late capitalist hellscape, where we’re always under pressure to be doing something, it takes some real effort to allow ourselves to rest. I sometimes regard my own rest as a means to an end: if I can just rest for a while, I’ll be able to do something again soon after, and that makes resting worthwhile (if uncomfortable). But actually, resting doesn’t need to be a means to an end. Your rest doesn’t have to make you more productive in the long run, or better at your job, or any other thing besides rested.

There are bastards making money from our reluctance to rest. Employers who exploit their employees are an obvious example, but anything which is designed to keep you busy is also preventing you from resting. (This is one of the many, many reasons that diet culture is entirely, well, a cultural construct, and wouldn’t exist if it weren’t for several fucked up aspects of capitalism.) To consciously choose to rest, to just fucking chill, is to spit in those bastards’ proverbial faces.

And my rest, I suppose, is particularly profound because I’m multiply marginalised. Homophobia, transphobia, ableism, bigotry in general, they keep their victims on their toes. Being queer and AFAB and disabled means that I’m expected to work harder than my cishet, male, abled counterparts, and there’s something that feels quietly radical about just… not doing things. I’m not financially privileged enough to completely stop doing things, but spending a couple of weeks just taking some deep breaths and surviving as a queer, AFAB disabled person is not what bigots want me to do. Bigotry relies on us being exhausted and distracted and miserable, and taking some time to rest patently defies that. And I like to be defiant.

I wanted to explain my unexpected hiatus to y’all, but I also wanted to share my thoughts on rest because it really is difficult to rest and not feel guilty about it. I hope this blog post has helped to reassure at least one person that their rest is not just a state of inaction, or a means to boost their productivity – it is an act of self-love and of resistance, and I am exceptionally proud of anyone who is currently pulling it off.


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Disability, Dignity and the Myth of Independence

Stock image of the side of a door with keys inserted in the keyhole, primarily because it was the nicest thing that came up when i searched for "access".

I am well and truly fed up with people talking to me – or at me – about disability & independence.

You hear it in school. You hear it in college. You hear it in media about or relating to disability. Even the UK government calls the benefits it awards to disabled people “Personal Independence Payments”. And honestly? It gets on my tired, disabled nerves.

It gets on my nerves because very few people are truly independent. Have you ever ordered a pizza? You depended on somebody else to cook and deliver it. Have you ever made a phone call? You depended on the engineers who made that possible and on the person who sold you your phone. Even when people go off-grid, living self-sufficiently in reclaimed shipping containers, they’re often relying on the inventors and manufacturers of solar panels. I cannot think of a single person who is actually truly independent, because humans are social animals who are hardwired to rely on, and to help, other humans.

So why do I, as a disabled young adult, have to strive for some arbitrary level of independence that is vaguely defined and contrary to human nature?

People talk about independence like it should be the end goal for many folks with disabilities. The ideal disabled person, in society’s eyes, is one who can go places alone, do their grocery shopping on their own, complete household tasks unassisted and rely on nobody. Which is especially weird when you consider the number of adult men who have no clue how to do laundry or where to find vegetables in a supermarket, having sailed from life with parents to life with a partner who, if they’re female or assigned female, will do all of those things for them. In suggesting that disabled people should aim to – or want to – reach a level of independence whereby they don’t need to live with somebody or use the services of a carer, we’re holding disabled people to a higher standard than lazy men without disabilities.

Holding disabled people to high standards isn’t new, of course; one need only glance at the coverage of any Paralympics event to realise that disabled people are expected either to be groundbreakingly good at something or to melt into the background, meek and inoffensive. Expecting disabled people to be more independent than their abled peers isn’t outside of the norm, but it is damaging and hurtful to those of us who might never be able to live alone or who might always need to phone their mum before sending an email (which I definitely do). I’ve learned not to feel bad that I’ll never be a Paralympic athlete, or Rain Man, but I still feel bad that I’m not the wholly independent disabled person that I’m allegedly supposed to be.

I propose that we shift our focus away from independence, and instead look to a more subjective, holistic measure of quality of life for disabled people: dignity.

The wonderful thing about promoting dignity, rather than independence, is that its parameters change from person to person. For example: Alex, Bobby and Carly all have a disability that makes unlacing boots difficult for them. Alex feels undignified when xir partner unlaces xir boots for them, so xe spends the extra time practicing unlacing xir boots and mastering the use of a shoehorn to make the process easier. Bobby feels undignified when he’s bent over, struggling with his laces for fourteen full minutes, so he asks his friend to give him a hand. Carly, meanwhile, finds that both of those options undermine her personal sense of dignity, so she only buys and wears boots with elastic and no laces at all.

That last sentence is important – specifically, the part about Carly’s “personal sense of dignity”. We all experience dignity differently and can find different situations more or less dignified depending on our cultural backgrounds, personal hang-ups and many other factors. Independence is a rigid, standardised goal that looks similar for everybody who strives for it, but dignity is a personal, flexible goal that is achievable for everyone.

Some people probably wouldn’t feel dignified rocking backwards and forwards in a shopping centre, humming to themselves – but that, for me, feels more dignified than staying home, and certainly more dignified than a full-scale meltdown in a public place. The beauty of it is that I get to decide what makes me feel comfortable and act accordingly, without worrying that I’m not “independent” enough, and also without any external pressure to eventually “progress” to not using my tried-and-tested coping strategies, including reliance on my support network.

I don’t want to strive for independence. I’m a human, living in society, and I want to be able to lean on other people when I need to without guilt. I’m going to strive for dignity instead, however that looks for me.


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